Physicians & Researchers

Consensus Statement

Thanks to the hard work of physicians, researchers, patients and their families, the DADA2 official consensus statement has been published.  These statements outline how to diagnose and treat DADA2, based on the input of those who have navigated the disease over the last eight years. If you are a physician or patient and family who is facing a new diagnosis, this is a good first step. 

Shining a Floodlight row

The DADA2 Patient Registry

The world’s only Patient Registry dedicated to DADA2, and we are looking for the involvement of every DADA2 patient in the world. The more information we can gather, the better we can create a comprehensive picture of the disease that includes clinical data as well as patient-reported outcomes.  Learn how you can encourage your patients to join this secure, de-identified database developed on a platform used by world class health institutions.

When the Registry is ready to launch, we will share more details so that physicians around the globe can begin to introduce the project to their patients.

The 2023 Scientific Meeting

The Fourth International Conference on DADA2 took place in Bethesda, Maryland, on October 6 and 7, bringing together nearly 100 physicians and researchers from 23 countries, representing 22 specialties at 48 institutions. Together, this global group discussed the next steps in understanding the very foundational mechanism of ADA2 so that, in the future, better treatments and a cure can be identified. We are thrilled to share these pictures with you as just a taste of the wonderful, in-person reunion this conference proved to be following 5 years apart physically due to the pandemic. At the same time, we are thrilled that collaboration has never come to a halt and will continue as a result of this convening. 

Resources for Clinicians

There are certainly more questions than answers about DADA2, but we are fortunate to have a research network bringing together more than 30 countries to learn more.  Review the latest research, download materials for your patients, and identify physicians around the globe who are treating DADA2.