January 2024: Cheers to New Beginnings!

JANUARY Cheers to New Beginnings

Dear DADA2 Community, Welcome to this new year! As I mentioned at the end of last year, 2024 will be momentous. We have so much in the works that we are excited to share in due time. For now, I want to say thank you to every one of you who donated to the DADA2…

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February 2023: Rare Disease Day

DADA2 February 2023 Newsletter

Highlights of this month’s newsletter include:

  • What Can You Do to Celebrate Rare Disease Day?
  • Patient Registry Sneak Peek
  • Feature on DADA2 Patient, Andy Grundstad
  • Global Reach: Who’s Engaged in DADA2?
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November 2022: DADA2 in Twins

DADA2 November 2022 Newsletter

Highlights of this month’s newsletter include:

  • Identical Twins with DADA2: Anna Maria Beretta and Veronica Beretta
  • Reminders for 2023 – Patient Registry, Conference, and New Website
  • What Will You Do With Your DADA2 Story?
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October 2022: Global Updates

DADA2 October 2022 Newsletter

Highlights of this month’s newsletter include:

  • Global Team Continues to Work on Consensus Statement
  • Saudi Arabian Cohort: Study by Pediatric Hematologist, Dr. Fahad Alabbas
  • What happens when a lifelong dream collides with your own diagnosis of DADA2?
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April 2022: Staff Highlights

DADA2 April 2022 Newsletter

Highlights of this month’s newsletter include:

  • Meet Julie Williams, Genetic Counselor who will develop the DADA2 Patient Registry
  • Meet Dr. Pui Lee, DADA2 physician and researcher at Boston Children’s Hosptial
  • Meet Dr. Amanda Ombrello, DADA2 physician and researcher at the National Institutes of Health, Washington, DC
  • Where in the world is DADA2 being studied?
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February 2022: Rare Disease Day

DADA2 February 2022 Newsletter

Highlights of this month’s newsletter include:

  • DADA2 Foundation Founder Dr. Chip Chambers will be the keynote speaker at the Nationwide Children’s Hospital virtual event
  • Join us to raise awareness on Rare Disease Day 2022
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