News Archive

DADA2 December 2021 Newsletter

December 2021: ​Natural History Study ​and Patient Registry

December 14, 2021

Highlights of this month’s newsletter include:

  • DADA2 Foundation’s Natural History Study (NHS) and Patient Registry (PR)
  • Dr. Dan Kastner and Dr. Pui Lee provide insight on the importance of natural history studies
  • What Patients Need to Know… about The Natural History Study & Patient Registry
DADA2 November 2021 Newsletter

November 2021: First-Ever DADA2 Foundation Momentum Report

November 18, 2021

Highlights of this month’s newsletter include:

  • Momentum Report Highlights
  • A Note From Our Founder, Chip Chambers, M.D.
  • Supporting Each Other: Private Facebook Families & Friends Page
DADA2 October 2021 Newsletter image

October 2021: Research Round Up

October 4, 2021

Highlights of this month’s newsletter include:

  • Gene Therapy Research, Alessandra Mortellaro, Ph.D.
  • Hematopoietic Stem Cell Transplant, Hasan K. Hashem, M.D.
DADA2 June 2021 Newsletter image

June 2021: Consensus Kickoff

June 3, 2021

Highlights of this month’s newsletter include:

  • Consensus Committee gathers to discuss the critical milestone of writing a consensus statement
  • Family Spotlight: Anna Maria Beretta
DADA2 April 2021 Newsletter image

April 2021: Driving Towards Consensus

April 7, 2021

Highlights of this month’s newsletter include:

  • Patient & Family Gathering Planned
  • Clinician Spotlight: Dr. Ombrello
  • Family Spotlight: The Puzio Family
  • Nashville, TN joins other US cities to light up monuments for Rare Disease Day
DADA2 February 2021 Newsletter

February 2021: Inaugural Newsletter

February 25, 2021

Highlights of this month’s newsletter include:

  • Rare Disease Day 2021
  • Researcher Spotlight: Dr. Pui Lee
  • Patient Spotlight: Ishaan Jeloka
  • Dr. Dan Kastner (who discovered DADA2) receives prestigious Crafoord Prize from the Royal Swedish Academy of Sciences