Highlights of this month’s newsletter include:
- Meet Julie Williams, Genetic Counselor who will develop the DADA2 Patient Registry
- Meet Dr. Pui Lee, DADA2 physician and researcher at Boston Children’s Hosptial
- Meet Dr. Amanda Ombrello, DADA2 physician and researcher at the National Institutes of Health, Washington, DC
- Where in the world is DADA2 being studied?
Highlights of this month’s newsletter include:
- DADA2 Foundation Founder Dr. Chip Chambers will be the keynote speaker at the Nationwide Children’s Hospital virtual event
- Join us to raise awareness on Rare Disease Day 2022
Highlights of this month’s newsletter include:
- DADA2 Foundation’s Natural History Study (NHS) and Patient Registry (PR)
- Dr. Dan Kastner and Dr. Pui Lee provide insight on the importance of natural history studies
- What Patients Need to Know… about The Natural History Study & Patient Registry
Highlights of this month’s newsletter include:
- Momentum Report Highlights
- A Note From Our Founder, Chip Chambers, M.D.
- Supporting Each Other: Private Facebook Families & Friends Page
Highlights of this month’s newsletter include:
- Gene Therapy Research, Alessandra Mortellaro, Ph.D.
- Hematopoietic Stem Cell Transplant, Hasan K. Hashem, M.D.
Highlights of this month’s newsletter include:
- Consensus Committee gathers to discuss the critical milestone of writing a consensus statement
- Family Spotlight: Anna Maria Beretta
Highlights of this month’s newsletter include:
- Patient & Family Gathering Planned
- Clinician Spotlight: Dr. Ombrello
- Family Spotlight: The Puzio Family
- Nashville, TN joins other US cities to light up monuments for Rare Disease Day
Highlights of this month’s newsletter include:
- Rare Disease Day 2021
- Researcher Spotlight: Dr. Pui Lee
- Patient Spotlight: Ishaan Jeloka
- Dr. Dan Kastner (who discovered DADA2) receives prestigious Crafoord Prize from the Royal Swedish Academy of Sciences
- « Previous
- 1
- 2