Tell Your Story

Share your DADA2 Story

There is power in sharing your story. And we want to help you. Let us know you'd like to share your story, just like Andy did in 2023. We can feature it on the DADA2 site or you can have it for your own personal fundraising or story telling in your community.


The DADA2 Foundation is not directly working to influence policy, but we do engage with fellow Rare Disease and health-focused organizations from time to time in focused efforts. We encourage you to review these organizations and see if any are a good fit for your desire to advocate.

National Organization for Rare Disorders (NORD)

Everylife Foundation

Rare as One Initiative

Global Genes Global Advocacy Alliance

EURORDIS Rare Disease Europe