Vasculitis

As we approach Rare Disease Day 2025, I find myself reflecting on how far we’ve come. It was just 11 years ago this month that DADA2 was officially recognized as a rare disease. While we are all too familiar with the challenges faced by rare disease families, Rare Disease Day is also a time to acknowledge the strength, progress, and sense of community that have emerged from our shared journeys. To borrow the words of a new member of our community, visual artist Ellie Pritts, these past 11 years have truly been “a journey of adaptation and resilience.”

As we head into the new year, we are hopeful that new scientific discoveries and increased support for newly diagnosed patients and their physicians will ultimately improve the lives of patients and help identify the undiagnosed. We invite you to be a part of this important mission with a one-time or monthly gift. Your generous contribution of any size is critical to continue all of the work you see below. Are you READY to join us?