Fatigue

The communities we build around us are powerful. This month, we're sharing stories about how we've come together as a community to make life better for patients through research, as well as quick and thorough clinical care. I would also love to hear your thoughts on what we should highlight in future newsletters or on social media that furthers our mission to convene, collaborate and communicate to find a cure.

Spring has arrived in the southern United States, bringing its signature unpredictability—one moment warm and glorious, the next stormy and cold. In many ways, this mirrors the uncertainty in the political landscape, where funding for rare disease research remains in flux. The Foundation is closely monitoring developments and advocating for continued support. While it’s still too early to determine the full impact on current and future grant funding, we remain steadfast in our mission.