DADA2 Joins Chan Zuckerberg Initiative Inaugural Rare as One Cohort
Chan Zuckerburg Initiative chooses DADA2 Foundation for the inaugural cohort of the Rare As One Project – which invests grant funds in capacity building for patient-driven rare disease foundations.
Read MoreDADA2 Foundation Presents at NIH Rare Disease Day
The DADA2 Foundation partners with leading researchers to present DADA2 at the NIH’s Rare Disease Day events. To watch, copy and paste this link and begin watching at 2:09:00. https://videocast.nih.gov/watch=34608 Credits to the National Institutes of Health, Washington, D.C., USA (2018)
Read MoreDADA2 Increasingly Reaches Global Physicians
Foundation increasingly presents to Grand Rounds and Conferences, raising awareness of DADA2 in Asia, Europe, and North & South America.
Read More2nd International Conference
Second International Conference on DADA2 is held, increasing attendance to 123 physicians & researchers from 25 countries & 93 patients and family members from nearly 13 countries attend. In vitro studies that began as a result of this conference led researchers to realize the potential for gene therapy. Watch all of the Conference Videos on…
Read MoreICD-10 Code Established in Record Time
ICD-10 Code for medical records and insurance coverage applied for, considered and approved. This is perhaps the fastest time from disease discovery to ICD-10 code and is currently actively used.
Read MorePublished Papers on DADA2 Increases
Paper publishing on DADA2 picks up, including immunodeficiency and bone marrow transplant. Papers continue to be published nearly every month since that time.
Read MoreNIH Cohort Successfully Treated with TNF Inhibitors
Learning from the Israeli physicians who discovered TNF inhibitors as a successful treatment to desperately save one life, and then continue to treat patients, US-based NIH physicians begin administering TNF inhibitors to their first cohort of patients, finding similar results.
Read More1st International Conference Hosted by DADA2 Foundation
The Inaugural International Conference of DADA2 is held in Bethesda, Maryland, near Washington, D.C., USA. In attendance were 136 clinicians/researchers from 16 countries as well as 69 patients & family members from 6 countries attend. This is perhaps the fastest time from disease discovery to global collaboration of any disease in literature. Further, during this…
Read MoreFirst DADA2 Papers Published in NEJM
DADA2 is discovered in 2014 when groups in NIH in the U.S. and in Jerusalem, Israel, simultaneously identify – for the first time in medical history – the deficiency of adenosine deaminase 2 (DADA2), both publishing in New England Journal of Medicine.
Read MoreInitial Diagnoses End Diagnostic Journey
Chambers family receives their diagnosis, and begins work to gather international engagement around DADA2. Works with NIH to connect as many researchers who were studying DADA2 as possible. Watch the video above with, which told the Chambers’s story through a partnership with the RareIs project.
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