Join Us for ALL IN

The 4th International Conference on DADA2 is October 6th, 2023, in Bethesda, Maryland - just outside Washington, DC, and very close to the National Institutes of Health (NIH)!

Hyatt Regency Bethesda

One Bethesda Metro Center 7400 Wisconsin Ave Bethesda, Maryland

8:00 a.m. - 6:00 p.m. (Eastern Standard Time in the U.S.)

Reception to follow

This year, our theme is ALL IN - a nod to how it will take all of us to find a cure.  Every question answered, every conversation had, every discovery made adds to the meaning of our work and propels us forward. So join us – whether you’re a physician, researcher, patient or family member.

Specifically, we will launch the world's first-ever DADA2 Patient Registry and Natural History Study, which allows patients to securely contribute their daily life experience with DADA2 to the clinical research for a more complete picture of the disease. We need everyone there to make the launch a success.


Registration is free and easy.  We offer both in person and online options, though we hope as many people will join us in person as possible.


If attending in-person, and you have registered for the conference - book your travel as soon as possible so that the best airfare can be obtained. We have a room block reserved at the Conference location that offers a discount, and only reserve your accommodations through the link here or through an email invitation that will be coming to many of you that have attended prior conferences. 


The agenda and other activities will be posted on the website in the months and weeks before the conference, so watch for updates!

Why Attend the Conference

Doctors _ Researchers Conference block

Physicians & Researchers Will Gain New Insight

The work in your labs is exponentially multiplied when we gather.  Join us for a memorable time of learning and discussion – whether you have come before or will join us for the first time.  Highlights include:

  • Discuss how to move forward to determine the pathophysiologic mechanism for the ADA2 protein. 
  • The latest possible drug and gene therapy.
  • Time to connect with researchers from 30+ countries.

Patients & Families Will Find a Community

A rare disease can make you feel alone. But together, we are stronger. Join us to meet other DADA2 patients and family members, learn from DADA2 experts on navigating life, get an update on DADA2 from the world's expert physicians and scientists and ask questions. Highlights will include:

  • Clinical updates
  • Mental health conversations
  • How to get involved with the Foundation

Have Conference Questions?

Email us and let us know what you need help with to get to the conference, and what you want to hear at the Conference.